Skip to main content

The sweet smell of success (the opposite of that)

Let me lock in the system at warp 2
Push it into systematic overdrive -
U know what 2 do

Pardon the juvenile humour off the top, but this journey has been so unreal that I can't help but fall back on laughing in the absence of appropriate things to say.

Amanda's headed for another big surgery this week.

Quick recap of how we got here: She went into hospital in late January to have her ovarian cancer tumours taken out. That surgery ended up taking a foot-long chunk of her colon, so they spliced what was left to her nature-given outlet. Well, that blew apart and she went for emergency colostomy surgery. THAT didn't work, either, as illustrated by our guiding light with the scalpel hand and the silver tongue, Dr. Sugimoto:

I see a tampon and a freaky condom, but this is a medically accurate drawing.

The business end of the remaining colon sloughed its way back into her insides and strictured itself off, creating a cul-de-sac with no escape for poop nor gas. They put her on TPN (full nutrition by IV) but let her drink, trying to buy time until the gnarly mess of adhesions and young scar tissue inside settled down enough that they could go back inside and ... re-colostomitize. Yes, she's been in hospital the whole time. One week was the expected stay. Going on six weeks or more, now. I've lost count.

So, I'm sure you're thinking -- hey, food or not, you're still making poop every day. Where was it all going?

Mommy and Gordon take a walk.
Great question. None of the answers I could provide would be anything less than disgusting and/or unbelievable. By the surgeon's account, the human body has ways of rerouting things that would make the designers of the Internet jealous.

Meantime, the docs had Amanda on a vacuum-suction wound appliance. They packed her huge, gaping, sternum-to-pubis incision with what looks the grey acoustic foam on my studio walls, taped it all up airtight and applied 24/7 suction to it. It slurped out the healing juices from the wound. Very high-tech, and I'd never heard of it until I saw it.

All good, until it started to stink. Like, open sewer kind of stink. Not a great volume of stink, but enough to make Amanda queasy and embarrassed. Heck, she was nauseated and fatigued most of the past week, made worse by odors she couldn't tell were real or ghosts.

We found out this weekend that a) they were very real and b) holy poop, it was poop. Coming out of the wound. W....T.....F?

Yes, it looks like her colon has popped another hole. Not only that, her abdominal wall must be compromised too, in order for the poop liquid to be sucked through the wound, the sponge, the vacuum, and into the tank.

Hence, the order to get in there and fix things ASAP.

Other than the complete lack of eating, recurrent nausea, disturbing stinks, a gaping wound that looks like linear steak cooked from raw to well done, and assorted symptoms that aren't my place to be talking about without her say-so, things have been appeared to be half-decent for the past couple of weeks.

Amanda's been having some excellent visits with Gordon, including having him accompany her on walks through the hospital hallways. He loves to push the IV pole and "help" push the wheelchair when she needs it. He gets a huge kick out of riding the fancy bed up and down like a helicopter.


She even came home for a few hours each day this past weekend, still attached to the vacuum unit.

Seriously, this latest turn has me pretty disturbed. From what I understand about feces, it's not supposed to be outside the expected tubes. It's certainly not supposed to be on open wounds. Definitely not spread across open two-foot-long wounds and sucked through, 24/7. None of this seems like remotely OK news, frankly. The fact that Dr. Sugimoto is not pacing around and freaking out is what's got me grounded at this point -- if he's not panicking, I'm going to believe that he can fix this and get her back in order.

Until the surgery happens, and it could happen as soon as Monday (tomorrow as I write this), the vacuum gadget is out of the picture and it's back to plain old pack-it-with-gauze, sorry-for-the-agony.

Still ahead: the surgery. What colon will she have left? Where will they choose to route it to come out of her body? What are the health consequences of having had all this poop in unwelcome places? How long will it take to recover THIS time? When will Amanda be home?

Oh, and we haven't yet had a conversation with the medical oncologist about what the lab analysis of her tumours revealed. First things first -- THEN we can get back to the stuff that we were SUPPOSED to be worrying about. (That wasn't meant to sound sarcastic.) (Neither was that.) (Seriously, that was sincere. The oncologist is a good dude.)

We're feeling DONE, but we ain't done yet. Not by a long shot.

Comments

  1. Amanda and Gordon, both still smiling. I'm amazed by her. And you.

    Bless you all. I wish so much I could help.

    ReplyDelete

Post a Comment

Popular posts from this blog

Gordon turns four and has questions

Gordon wanted to know where mommy went.

Not what happened to her body, but where SHE went.

We celebrated his fourth birthday this weekend with three gatherings. One at our house with his little friends. One at nana and grampa's house. One in Stratford with the Simpson clan.


The big party for the kids was a success. I'd never planned such an event. Thank goodness for the Internet, where I found a Martha Stewart article that laid out the basics. And thank goodness for Party City, which had a ton of Transformers party stuff ready to buy. I wasn't feeling well, but managed to pull it off. Thanks to sister Shannon and SIL Amy for being the Designated Adults who helped in wrangling and last-minute logistics. G thought the whole event was kind of loud, but he really enjoyed it. And I feel like a winner for making it happen -- some of the other parents even chimed in that they now know what goes into a kid's party, since they were as clueless as me! Great!

Great time at nana&#…

Hard to believe it's been a year - but it has

One year ago today, we lost Amanda.

Time plays tricks on all of us. We can think "that was so long ago" at the same time as "it feels like yesterday." I run into this all the time with Amanda's death.

Yes, it feels like just yesterday, or last night, or later today, that Amanda collapsed in the kitchen and died after that long, brutal battle with ovarian cancer. But every day has ticked by at a pace like any other, and it's been a whole year of those days, with incremental and sometimes revolutionary change.

As I move about our home, it's hard to fathom that she's been gone a whole year.

Many of the decorative items she carefully arranged throughout the house are in the exact same place as the last time she touched them. She had the vision, not me, so I've been reluctant to disturb her decisions on what looks good and works.

In other places, I'm reminded that it's been at least a year since something's been in place. Like the fully-s…

She went in to have our baby and came out with a cancer diagnosis

It's been two weeks since my wife and I welcomed our son Gordon into the world. It's also been two weeks since we found out Amanda has cancer.

We went into the IWK on Tuesday, April 2nd for a Cesarean section prompted by an ultrasound earlier in the pregnancy that showed the placenta dangerously close to the cervix. Too close and she could bleed to death during delivery. An ultrasound closer to the due date showed the placenta in a slightly safer place, but now blood vessels were blocking the way out. An emergency C-section was in order.

So we went in, three weeks early. The delivery went smoothly. Our baby Gordon was frank breech, pulled out buttocks-first. I went over and cut the cord. I brought our first child back to Amanda to let her see. It was better than I'd expected!

Then the surgeon started talking about finding bumps. Instead of stitching her up, the team was finding trouble inside her.

They had to page the oncologist. I went into shock, sweating and heaving on t…